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LILA RUFFE FUSTER
don't dare to tell me how it will be, the future is to be created…


Welcome to My Fundraising Page
https://support.lupus.org/site/TR/MYM/TeamMakeYourMark?px=3031745&pg=personal&fr_id=1962 I am making my mark on lupus! Join me...

Lila Ruffe Fuster
May 10, 20241 min read


Lupus Awareness Month: Illuminating the Path Forward
May is Lupus Awareness Month, a time when our community unites to shine a light on this often invisible illness. It’s a period marked by...

Lila Ruffe Fuster
Apr 30, 20242 min read


Recognizing the Importance of Rare Disease Day: A Message to Teens with Lupus
https://www.rarediseaseday.org/ Donate Guess what today is? Yup, you nailed it - Rare Disease Day! It's like this big, global shoutout to...

Lila Ruffe Fuster
Feb 29, 20242 min read


The Importance of Adherence in Lupus Treatment: Boosting Health on #AdherenceDay2023Date
Date: November 15th Hello, dear readers and brave warriors battling lupus! Today, on #AdherenceDay2023, we join the impactful campaign...

Lila Ruffe Fuster
Nov 15, 20232 min read


Unpacking the CAR-T Cell Therapy Revolution: A Beacon of Hope for Teens with Lupus:
"CAR T cell therapies raise hopes — and questions — for lupus and autoimmune disease" Nature Journal. Asher Mullard, CAR T cell therapies...

Lila Ruffe Fuster
Nov 3, 20233 min read


Navigating Through the Teen Years with Lupus: Insights and Guidance
In a recent insightful podcast, (you can listen at: https://www.lupus.org/resources/the-expert-series-lupus-and-teens?utm_source=LupusFdn...

Lila Ruffe Fuster
Oct 12, 20234 min read


Finding My Lifeline in Madrid - AMELYA's Unwavering Support 🙌🏻
Navigating life as a 17-year-old is a whirlwind on its own. Add lupus to the mix, and it's a whole other level of challenge. But in the...

Lila Ruffe Fuster
Sep 3, 20231 min read


Beyond the Physical - Navigating the Mind's Battle
Hey Lupus Warriors and Lifelong Supporters! 🌟 When most people think of lupus, they might imagine rashes, joint pain, or fatigue. But...

Lila Ruffe Fuster
Aug 27, 20232 min read


A Fast-Track to Hope with CAR-T CABA-201 Therapy
In between the roller-coaster of life and managing lupus, there's some groundbreaking news in the medical world that's worth putting a...

Lila Ruffe Fuster
Jul 23, 20231 min read


Breaking Down Ultraviolet Light and What It Means for Us Lupus Warriors
Hey there, fellow Lupus Warriors! 👋✨ When you're a teen trying to survive junior year, the last thing on your mind might be the...

Lila Ruffe Fuster
Jul 2, 20232 min read


Unraveling the Mystery of Antiphospholipid Syndrome
Hey there, Lupus Warriors! 🌟 Lately, I've been diving deep into the complexities of lupus and its companions. Today, I want to chat...

Lila Ruffe Fuster
Jun 18, 20232 min read


Light Up the World to Bring Awareness to Lupus: A How-To Guide
Raising awareness about lupus is crucial in promoting understanding, support, and research for this complex autoimmune disease. One...

Lila Ruffe Fuster
May 26, 20232 min read


Navigating the Spanish Lupus Research Landscape: Top Websites for Lupus Research in Spain
When it comes to accessing reliable and region-specific information on lupus research in Spain, having access to trustworthy websites is...

Lila Ruffe Fuster
May 24, 20232 min read


Unveiling the Best Websites for Lupus Research: A Teen's Guide
When it comes to researching lupus, having access to reliable and up-to-date information is essential. As a teenager seeking to...

Lila Ruffe Fuster
May 23, 20232 min read


Shining a Light on Teen Visibility and Symptoms on Lupus Awareness Day: May 10th
As we approach May 10th, Lupus Awareness Day, it is crucial to shed light on the experiences of teenagers living with lupus. This day...

Lila Ruffe Fuster
May 9, 20233 min read


Navigating the Sun: Sun Safety Tips for Teens with Lupus
As a teenager with lupus, it is important to be mindful of sun exposure. The sun's rays can trigger lupus flares and worsen symptoms in...

Lila Ruffe Fuster
Apr 29, 20232 min read


Skin Care and Lupus
Taking care of the skin is crucial for teenagers with lupus. Lupus, an autoimmune disease, can cause various skin manifestations and...

Lila Ruffe Fuster
Apr 8, 20232 min read


Hair Care Tips for Teenagers with Lupus
For teenagers with lupus, managing hair care can be a unique challenge. Lupus, an autoimmune disease, can affect various parts of the...

Lila Ruffe Fuster
Feb 12, 20232 min read


Akkermansia and Leaky Gut: Exploring the Gut Microbiota Connection
Akkermansia, a beneficial gut bacterium, has garnered significant attention in recent years due to its potential role in maintaining gut...

Lila Ruffe Fuster
Dec 22, 20222 min read


Decoding the Microbial World: DNA Sequencing of Gut Bacteria
Introduction: Advancements in DNA sequencing technology have revolutionized our understanding of the complex world of gut bacteria. In...

Lila Ruffe Fuster
Oct 2, 20222 min read
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